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This project focuses on establishing a core framework and evidence base about tāngata whaikaha Māori (Māori with lived experience of disability) and their whānau in Aotearoa New Zealand. Working with Te Ao Mārama Aotearoa, iNZight is conducting a stocktake of existing disability data across government surveys, administrative datasets, and academic research, and using this to identify gaps, key issues, and priorities for the future. iNZight is also developing a series of recommendations to strengthen data collection in the area and support informed decision-making.
Funded by: Te Ao Mārama Aotearoa
The report from this project is currently being finalised and will be available to download soon.
Despite evidence that Māori experience disproportionate rates of disability, there is a lack of accurate, culturally-grounded data on the prevalence and impacts of disability on Māori. This limits understanding of how disability affects Māori health, wellbeing, social inclusion, and economic outcomes, and constrains efforts to address these inequities in policy and disability services.
Funded by: Health Research Council of New Zealand
Hosted by: University of Otago
Led by Bernadette Jones, this project used a Māori-led methodological approach to develop culturally appropriate measures of disability, quantify its prevalence, and examine its impacts on health, wellbeing, social participation, and economic outcomes. It involved a large-scale quantitative survey designed to better understand lived experiences of disability by Māori. The survey explored cultural identity alongside everyday experiences of disability, including the language people use to describe themselves and their limitations.